Smiles

Who can resist smiling at a baby?  Not many.  Why is that?  Most people will break out their funniest face and their goofiest voice just to try and make a baby smile.  A baby they don't even know.  But when it comes to other adults, we tend to be stingy with our smiles.  Why do we often choose to keep our smiles to ourselves?   Have you ever had someone smile at you and turn your whole day around?  Have it completely warm your insides?  A smile is life changing.

 

Kalvin and Finn shared some smiles at the local sunflower patch.



I was walking home late from work recently.  I winded my way through the back alleys of Boston in attempt to shave a few seconds off my walk.  It was dark, really dark.  I wanted to stop and change my shoes, but there really was no place to sit.  I kept moving.  As I walked, I spotted two people outside a bar sharing a smoke.  I kept my eyes focused on them, mainly out of fear.  I continued to move closer to them, gripping my bag a bit tighter as I walked. And then, out of nowhere, it happened.  A giant hole appeared in the sidewalk.  I landed in it.  On all fours.  As I tried to gather my belongings and my pride,  I heard the sweetest sounding voice yelling to me, "Are you all right.  Are you okay?" The voice was coming from the direction of the bar.  Could it be the voice of the two people I was just so weary of?  I looked up to see them running towards me.  "Are you ok? Let us help you?" they repeated in the sincerest,  kindest voice I have ever heard.  I could feel their warmth. Their sincerity.  "Please, let us help you," they begged.  The woman's voice was so telling.  As she helped me to get up, I looked up at her and there it was.  A smile.  In that moment, I knew she cared.  It was written all over her face.  And as embarrassed as I was, my fall had been overshadowed by their kindness.  It stayed with me as I continued on my way.  Wrapped around me like a blanket.  Making me walk a little taller.

A little further on down the road, I took notice of a couple walking hand in hand in front of me.  I was focused on the woman's jeans at first; thinking to myself how desperately I needed a new pair, when I noticed how peaceful they looked strolling arm in arm.  They made me smile to myself.  As I passed the couple, now standing in front of the bike rack for the new bike share system,  I heard the woman comment to the man how she has been wanting to try riding one of the new public bikes.  How fun they looked.  I was thinking the same thing to myself.  Our eyes met for a second.  Still wrapped in the warmth from my earlier "helpers," I gave her a big smile.  Feeling confident,  I shared out loud that I too had wanted to try riding the new public bikes.  My validation caused her to return the smile.  I felt happy.  My insides felt warm.  I felt love from two strangers.  A kind act is contagious. Kindness begets kindness.  A kind act can create a miracle.  

I was giving Kalvin one of his daily shots for the blood clot in his leg when I truly realized what a difference a smile can make.  This boy can handle just about anything-staying in the hospital for days, MRI's, scans and EKG's, but he does not like shots.  I was thinking how far we had come in these last few days.  The tears and panic attacks had subsided.  Exposure therapy was working.  As I looked up at him,  I really noticed just how terribly scared he still looked.  Uncomfortable.  Petrified even.  All of the above.  I placed my hand on his arm and smiled up at him.  "Do you know how incredibly brave you are?" I asked.  "You are the bravest person I know, Kalvin." Still smiling at him.

 

That is when I noticed the tears rolling down his cheeks as he managed to squeak out, "Thank you, that makes me feel so good."  I often find Kalvin all choked up when I say sweet things to him. When I remind him what an amazing person he is.  It is as if he doesn't hear them enough, which obviously he doesn't.  I feel like I am always telling him how brave and wonderful he is, but maybe I am just thinking it and not verbalizing it as often as I think.  Or at least, not sharing it with him.  At that moment,  I really understood how impactful a smile and a compliment can be.  They can be life changing.  Spoken words are so powerful. 

 

Do you know someone who could use your smile today?  A smile is a compliment.  Share one today and notice how your own insides fill up with warmth.

 

 

 

 

Pain Pain Go Away-blood clot after angioplasty

Kalvin woke up in the middle of the night crying.  Something he has never done.  He said his leg hurt.  The area he pointed to seemed like a possible pulled muscle in his groin.  So there we sat in the middle of the night doing stretches together.  He never really went back to sleep.  Nor did I.
He began limping as he walked.  Using the wall to get down the hall in the morning. 
All of this on the first day of school.

Fist day of 2nd grade.  You can see in this picture how his left leg is bent a bit
 to avoid having any pressure on it.

First day of pre-school.

"Pain, pain go away.  Come again another day," we sang.   And it worked.  The pain went away.  For four days.  Gone.  No pain during soccer.  Baseball was fine.   And then,  Monday morning came. And with it,  pain.  In the morning Kal couldn't walk again.  This time the pain lasted all day.  He was still limping and holding onto the wall to walk when I picked him up from school.  The pain was right where he had his angioplasty.  Too coincidental to let it go unchecked.  So off to Children's we went.  It was a long visit.  A long visit that ended with not such good news.  Kalvin has a blood clot near the area in his femoral artery that was widened during an angioplasty procedure in his left leg on July 29th.  Why the clot five weeks later?  That seems to be the big question.  One that has stumped the Interventional Radiologist, the Cardiologist, the Pediatrician and the Interventional Catheterization Chief.   Hmmm, what to do?!?  We went home and awaited instructions.

Two days later, I was driving home when I received the call.  Kalvin was going to be placed on a blood thinner called enoxaparin.  Lovenox.  The only way to receive Lovenox is through a needle.  Kalvin's worst enemy.  The only treatment he is afraid of.  He can handle a CAT scan, an echo or a lung scan like a champ.  The only treatment that makes him cry.  Needles.  A shot twice a day.  For two weeks.  Here we go.  We get to give him the shots at home. Lots of fun for everyone.

I was also informed that playing soccer was out.  Not even at recess.  Kal loves his recess play.  And the recess soccer has helped him bond with other boys.  Two weeks is going to be tough.

I continued on my way when a call came in from home. Finn had missed a step on the playground and hurt his arm. He was still complaining of pain hours later.  The general consensus was that it was broken.  Are you kidding me?  Really?!?

I felt like crying myself.  And not just tears.  You know, the real kind of crying.  The kind you need to do in the shower.  I felt sick to my stomach.  I tried to digest the news about Kalvin and wondered what awaited me at home.  As I turned up the radio to drown out the thoughts in my head, the song playing, as if on cue,  No One Said It Was Easy by Coldplay.   It  is has been confirmed.  I am living a Lifetime movie.  I was playing out a scene right there in my car.  Music and all.

Finn was not excited to head into the doctor. Kalvin has always loved going to the doctor. We are blessed this way.  Finn screamed the entire hour ride there. Pleading with me to turn around and go home.  He said he just needed his ice and the pain would go away.  Kalvin tried reasoning with him by explaining that Finn had nothing to worry about,  that he was actually the one with the real problem today.  And Kal didn't even know about the shots...yet.  I was waiting to let the doctor tell him all about that!

This was Finn...the entire way to the doctor.

We headed into Children's. First a stop across the street at the Pediatrician's office. We got the word an x-ray would be needed on Finn's arm. The Cast Room and Hematology.  Two new area of Children's we would be visiting.  Looks like we will succeed in working our way through every department of Children's Hospital. One at a time.

After the x- rays revealed a buckle fracture in Finn's wrist,  we were off to the Cast Room. And then Hematology Department to learn how to administer the shots of Lovenox.

You can see how Finn is holding his arm against his belly. 
He did this all day but kept up his normal activity level.

Yes, broken.  The bulge in the right bone is the buckle fracture.

Onto the Cast Room.

 

I love how they are both watching so intently.

Finn is not sure what to think.  He tried to take the cast off. 
This is the look when we told him it was here to stay for 3 weeks.

A visit with the Anticoagulation Services to pick up our Lovenox kit and we were ready to go home.  Just another day at Children's Hospital.  Kalvin loves to sing the lyrics "Until Every Child is Well" from the BCH commercials. Repeatedly.

Lovenox kit complete with our very own sharpie disposal box

Kalvin gets to wear this new fancy bracelet indicating he is at high risk for bleeding. 
He was not thrilled at first. 

As I gave Kalvin his first shot and real tears rolled down his cheeks, my own pain became real. I know he is genuinely scared. It is hard to watch. You try to do it fast, but he likes it slow. He delays the pain. I try being stern and forceful, but he is too strong and with a needle you can't wrestle around.  I have to wait until he is ready.  It makes it harder for me as well.

He starts saying he hates his life.  Wondering why is this happening to him.  He hates his leg.  He repeatedly asks me why this is happening to him.  I don't know what I would say or how I would respond if I didn't have the words of a dear friend.  Words I referred to from here in an earlier post.  They come into play again.  I remind Kalvin that the why doesn't really matter. We can't control the why.  Life can be unfair.  Life can be hard.  Sometimes,  we don't have all the answers.

How we handle ourselves is what we can control and is what defines us.  Makes us who we are.  It is not the challenges placed upon us, but instead how we choose to face them that will have the most bearing on the path our lives will take.  I ask him to think of Will.  To think of Will playing hockey again and how he has responded to adversity.  I remind him, when life hands you lemons you make lemonade. He seems to understand.

Tuesdays with Kal & Finn-Paying It Forward

As summer winds down, we have been trying to make the most of our Tuesdays.  Some Tuesdays, we have responsibilities to tend to.  Like a post surgical visit to Children's.  This Tuesday it wasn't so bad as the weather was not the brightest.

As we were making our way into Kalvin's post angioplasty checkup in Boston, we found ourselves sitting in Tobin Bridge traffic.  On a glum day to boot.  The traffic alone can dampen the happiest of people.  It is not a pretty bridge and painting it multiple times, that I can remember, hasn't helped a bit.  As we sat,  I found us all getting a little grumpier.

Here she is, the top of the Tobin Bridge. Under construction yet again.

Coming out the other side really isn't much brighter.

Trying to think of some little happy to turn our mood around, I remembered the dollars we were given at the start of summer mentioned here.  We were planning to "pay it forward" so as we approached the three dollar toll, I yelled out, "Boys, let's pay the toll for the car behind us and surprise them!"  Everyone perked up and even got a little excited.  A little happy.  The fog appeared to be lifting.

We got out our money and quickly scooted to the Cash Lane.  We told the Toll Booth Operator of our plan and handed over our money.  As we drove through we sloooweedd way down so we could watch the expression on the driver's face as the Toll Booth Operator explained that their toll had just been paid by the car in front of them...us!  It was fun.  Not the most original "pay it forward" I admit, but it worked to brighten our day as well.  We felt good.  Happy.

 

Really, you could see the fog lift right before our eyes.

 



We had to wait for what felt like an eternity for Dr. Alomari.  He was in surgery.  It is hard to get grumpy waiting for a doctor when you know he is in a surgical procedure that is taking longer than expected.  You don't even want him to rush because you think of the precious work he is performing.  You also know what it is like to be that parent waiting while your child's procedure takes longer than expected.  You pray all is going well for the patient and their family.  You have been there.

Kalvin took a nap.

And Finn and I, well we visited the bathroom six times.  Finn is officially potty trained.  Thanks to a delayed appointment at Children's!  See happy can be found everywhere.

And Kalvin's leg.  It looks fabulous.  We went over the ultra sound in detail.  And yes, Dr. Alomari asked me if I was a nurse or a doctor.  "Seriously, are you a doctor?  I can't remember," he asked me. "And you are asking the best questions."  For those who know me well,  you know this really made my happy.  Yes, I am a doctor.  With a degree from Google and Kalvin.

Kalvin, Finn and Dr. Alomari.  We go back in six months for another ultra sound.  Meanwhile, physical therapy both in school and outside of school.